About Us
The Fiori Rari Philanthropic Fund was born from the desire of Antonio Guida and Luciana Lombardi to promote and accelerate scientific research on rare genetic mutations that cause neurocognitive delay and associated disabilities.
In 2020, with the diagnosis of Viola, who was identified with a missense mutation in the IL1RAPL2 gene, a complex journey began for the family, filled with unanswered questions and uncertainties. As often happens for families receiving a rare genetic diagnosis, the initial feeling is one of being alone in facing a little-known and little-studied reality.
From this personal experience comes the will to transform difficulty into concrete action. Today, the Fund stands by families with the goal of supporting research, building a support network, and fostering greater scientific and clinical knowledge of these conditions.
Rare and often highly disabling, neurocognitive disorders of genetic origin involve the entire family unit. For this reason, the Fiori Rari Fund operates guided by the values of urgency, integrity, collaboration, and inclusion, with the conviction that only through research and shared work is it possible to concretely improve the quality of life of patients and their families.
